August 26, 2013 - Still No Changes

Not much has changed since my last post.   McKinley is currently in cast #6.  The curve is not progressing, which is a great thing.  But no improvement either.  :-(   Dr. Mendenlow is still preparing us for the future surgery, definitely not what we want to hear.  We still have faith that we will get a miracle.    McKinley had a great summer, even though we were only allowed water for a few days.  She had a 1 week break between cast #5 and #6.   Luckily, it fell around her birthday so we were able to have swim party for her turning FIVE!   We also took a day trip to the beach (McKinley's favorite place).   And we spent the other days at Carowinds Water Park.  I made sure she had a water activity every day!

McKinley started 5K last week, like any parent I am not ready to let her go. But with her in a cast it was a little harder.  She is at a great school with some awesome teachers, school nurse, and staff.  They were very helpful and active in completing a 504 plan for her. This plan provides McKinley with the "extras" that she may need while in school.   Such as allowing for more potty and rest breaks, being able to sit in a chair instead of the floor if she feels more comfortable.  It also lets everyone who is working with McKinley know why she is wearing a cast and what limitations she has like (NO WATER!)  Which means being extremely careful in Art class when they are painting ... its the little things that are so easily overlooked.  She has just finished day 3 of school and she LOVES it!  There have been no issues with her cast.  However, if we can get her talking under control, we will really be doing well!   Haha!!    

Cast #7 is scheduled for October 2nd.  Hard to believe we have been traveling this new road now for a year!   The curve was discovered on August 2, 2012 and our first specialist appointment at Shriner's Hospital was in September.   Time if flying!!!  And through it all, she impresses me everyday of what a strong and brave girl she is!   Her faith is still strong as well, she tells us often that "God is going to make her back all better!"